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Helpful Resources

Amyotrophic lateral sclerosis (ALS) Resources

ALS Association(ALSA)-

The ALS Therapy Development Foundation-

Project ALS-

Arteriovenous Malformations (AVMs) Resources

Mayo Clinic-

The National Institute of Neurological Disorders and Stroke- www.ninds/

National Organization for Rare Disorders-

Brachial Plexus Injury Resources

United Brachial Plexus Network-

Brain Injury Resources

Brain Injury Association of America-

Brain Injury Resource Center/Head Injury Hotline-

Defense and Veterans Brain Injury Center-

Traumatic Brain Injury-

Cerebral Palsy Resources

United Cerebral Palsy (UCP)-

The March of Dimes Birth Defects Foundation-

The Cerebral Palsy Foundation-

Friedreich’s Ataxia (FA) Resources

Friedreich’s Ataxia Research Alliance (FARA)-

National Ataxia Foundation-

National Organization for Rare Disorders(NORD)-

Muscular Dystrophy Association (MDA)-

Guillain-Barre Syndrome Resources

GBS/CIDP Foundation International-


United Leukodystrophy Foundation-

Lyme Disease Resources

International Lyme and Associated Diseases Society-

American Lyme Disease Foundation-

Lyme Disease Association-

Multiple Sclerosis Resources

The National Multiple Sclerosis Society-

Multiple Sclerosis complementary Care-

The Consortium of Multiple Sclerosis Centers/North American Research Committee-

The Multiple Sclerosis Society of Canada-

Multiple Sclerosis Association of America-

Neurofibromatosis (NF) Resources

Neurofibromatosis Network-

Children’s Tumor Foundation-

Neurofibromatosis Inc. California-

Post-Polio Syndrome Resources

Post-Polio Health International-

Global Polio Eradication Initiative-

Spina Bifida Resources

Spina Bifida Association (SBA)-

March of Dimes Birth Defects Foundation-

Spinal Cord Injury Resources

Christopher & Dana Reeve Foundation-

Reeve Foundation Peer & Family Support program-

Reeve Foundation Library-

CareCure Community-

Craig Hospital-

Facing Disability-

Online education-

International Spinal Cord Society-

Paralyzed Veterans of America-

Ralph’s Riders Foundation-

SCI Information Network-

Spinal Injury 101-


United Spinal Association-

Spinal Cord Injury Research Resources:

Canadian/America Spinal Research Organization-

CatWalk Spinal Cord Injury Trust-



Coalition for Advancement of Medical Research-

Craig H Neilsen Foundation-

Dana Foundation-

International Campaign for Cures of Spinal Cord Injury Paralysis-

International Research Consortium on Spinal Cord Injury-

International Society for Stem Cell Research-

Miami Project to Cure Paralysis-

Mike Utley Foundation-

National Institute of neurological Disorders and Stroke-

Neil Sachse Foundation-


Reeve-Irvine Research Center-

Rick Hansen Foundation-

Roman Reed Foundation-

Sam Schmidt Paralysis Foundation/Conquer Paralysis Now-


Society for Neuroscience-

Spinal Cord Injury Project at Rutgers University-

Spinal Cord Injury Research Program, U.S. Department of Defense-

Spinal Cord Research Foundation of the Paralyzed Veterans of America (PVA)-

Spinal Cord Society-

Spinal Cure Australia-

Spinal Research-


Travis Roy Foundation-

Unite 2 Fight Paralysis (U2FP)-

Veterans Affairs Rehabilitation Research and Development Service-

Wings for Life-

Yale Center for Neuroscience and Regeneration Research-

Spinal Muscular Atrophy Resources

Spinal Muscular Atrophy Foundation-

Cure SMA-

Muscular Dystrophy Association (MDA)-

Spinal Tumors Resources

The American Brain Tumor Association(ABTA)-

National Brain Tumor Society-

Musella Foundation for Brain Tumor Research and Information Inc.-

Making Headway Foundation-

National Cancer Institute-

Spinal Cord Tumor Association, Inc.-

Stroke Resources

American Stroke Association(ASA)-

National Stroke Association(NSA)-

Transverse Myelitis Resources

Transverse Myelitis Association(TMA)-

Johns Hopkins Hospital Department of Neurology-

The Cody Unser First Step Foundation-

Autonomic Dysreflexia Resources

Paralysis Resource Center-

Paralyzed Veterans of America-

Bladder Management Resources

Paralyzed Veterans of America-

Christopher & Dana Reeve Foundation-

The Spinal Cord Injury Rehabilitation Evidence(SCIRE)-

Bowel Management Resources

Paralyzed Veterans of America-

The Spinal Cord Injury Rehabilitation Evidence (SCIRE)-

Deep Vein Thrombosis Resources

National Blood Clot Alliance-

Vascular Disease Foundation-

Parlyzed Veterans of America-

Depression/Mental Health Resources

Paralyzed Veterans of America-

Suicide Prevention Hotlines (all free)

National Suicide Prevention Lifeline- 800-273-TALK (8255)

Boys Town Hotline- 866-697-8394

TransLife Line- 877-565-8860 (for people who are transgender)

The Trevor Project- 866-488-7386 (for LGBTQ youth between ages 13-24

Mental Health America- 1-800-969-6642 and

Not Dead Yet-

Anxiety and Depression Association of America-

Chronic Pain Resources

American Chronic Pain Association(ACPA)-

The Spinal Cord Injury Rehabilitation Evidence(SCIRE)-

Respiratory Health Resources

International Ventilator Users Network(IVUN)-

The Center for Noninvasive Mechanical Ventilation Alternatives and Pulmonary Rehab-

Paralyzed Veterans of America, in support of Consortium for Spinal Cord Medicine-

The Spinal Cord Injury Rehabilitation Evidence (SCIRE)-

Skin Care Management Resources

Paralyzed Veterans of America-

Craig Hospital-

Spasticity Resources


National Multiple Sclerosis Society-

Syringomyelia Resources

American Syringomyelia & Chiari Alliance Project-

Chiari & Syringomyelia Foundation-

Coping and Adjustment Resources

Reeve Foundation Peer & Family Support Program-

Fitness and FES Resources

National Center on Health, Physical Activity and Disability(NCHPAD)-

The Cleveland FES Center-

Nutrition Resources

National Institutes of Health: Office of Dietary Supplements-

Sexual and Reproductive Health Resources

Paralyzed Veterans of America-

The Spinal Cord Injury Rehabilitation Evidence(SCIRE)-

Women with Disabilities Resources

The Center for Research on Women with Disabilities(CROWD)-

National Resources Center for Parents with Disabilities, from Through the Looking Glass-

Mobile Women-

Rehabilitation Resources

The American Academy of Neurology(AAN)-

The American Academy of Physical Medicine and Rehabilitation-

The American Congress of Rehabilitation Medicine-

The American Occupational Therapy Association(AOTA)-

American Physical Therapy Association-

American Speech-Language-Hearing Association(ASHA)-

The American Therapeutic Recreation Association(ATRA)-

Association of Rehabilitation Nurses-

Commission on Accreditation of Rehabilitation Facilities(CARF)-

National Center for Medical Rehabilitation Research(NCMRR)-

National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR)-

Spinal Cord Injury Model Systems and Traumatic Brain  Injury Model Systems-

Recreation Resources

Achilles International-

BlazeSports America-

Challenged Athletes Foundation-

Disabled Sports USA-

National Center on Health, Physical Activity and Disability(NCHPAD)-

Paralympics: United States Olympic Committee-

Sports ‘N Spokes-

Turning POINT-

Adaptive Sports USA-

World T.E.A.M Sports-

Arts and Creativity Resources

Alliance for Inclusion in the Arts-

Association of Foot and Mouth Painting Artists-

AXIS Dance Company-

Ballroom Dancing-

Coalition for Disabled Musicians-

Creative Growth Art Center-

Disabled Drummers Association-

Full Radius Dance-

Media Access Office-

National Arts and Disability Center-

National Institute of Art and Disabilities-

ReelAbilities Disabilities Film Festival-

That Uppity Theatre Company-

VSA(formerly Very Special Arts)-

Travel Resources

Wheelchairs, scooters, power chairs-

Aviation Consumer Protection Division Department of Transportation-

Accomable Accessible Accommodation-

Craig Hospital-

Rick Steves Europe-

Northwest Regional SCI System at the University of Washington-

Accessible Journeys-



Emerging Horizons- http://22accessibleroadtrips.com

Flying Wheels Travel-

Starbrite Kids-

Mobility International USA(MIUSA)-

Rolling Rains-


The Society for Accessible Travel & Hospitality(SATH)


TSA Cares- toll free 1-855-787-2227

Wheelchair Traveling-

National Accessible Vehicle Rentals-

Accessible Vans of America-

Wheelchair Getaways-

Wheelers Accessible Van Rentals-

Tools & Technology Resources

Introduction to Wheelchairs-

Lightweight Models-

Wheels and Rims-

Propulsion Alternatives-






Quickie Models-





Motorized Wheelchairs-

Next Generation Power Chairs-

Chairs for Children- www.colourswheelchair.comwww.sunrisemedical.comwww.invacare.com

Seat and Positioning-

Standing Chairs- www.thestandingcompany.comwww.levousa.comwww.karmanhealthcare.comwww.redmanpowerchair.com

Reimbursement Considerations- 

Reeve Foundation-

Wheelchair Junkie-

Better Life Mobility Center-

Disabled World-

New Mobility-

Wheelchair Assistance-


Assistive Technology Resources

Assistive Technology Industry Association-

National Rehabilitation Information Center-

The U.S. Access Board-



Closing the Gap-

Disabled World-


Rehab Tool-


Environmental Control Resources

Association of Assistive Technology Act Programs-


Quartet Technology Incorporated-

Home Automated Living-


Reeve Foundation’s Fact Sheet On Assistive Technology-

Computing and Communicating Resources

Eye-Gaze Technology-


RJ Cooper and Associates-



The Accessibility Clearinghouse-

The Reeve Foundation Fact Sheet on Assistive Technology-

Voice Recognition Systems-

Eye-Gaze Technology-

Mouse Alternatives and Pointing Devices-

Universal Design Resources

Center for Universal Design-

National Resource Center on Supportive Housing and Home Modification-


The Institute for Human Centered Design-

Center for Inclusive Design and Environmental Access-



Shower Bay-

Mac’s Lift Gate-


The Ramp Project-

RAMPS Across America-

Adaptive Driving Resources

The Association for Driver Rehabilitation Specialists-

National Mobility Equipment Dealers Association-

National Highway Traffic and Transportation Safety Administration-

Adapting Motor Vehicles for People with Disabilities-

Mobility Works-

Mobility Resource-

Disabled Dealer-

Car and driving-

Clothing Resources


Adaptations by Adrian-

Easy Access Clothing-

Professional Fit Clothing-

Specially For You-

USA Jeans-

Rolli Moden-

Endless Ability-

Service Animal Resources

Assistance Dogs International-

Canine Companions for Independence-

PAWs with a Cause-

National Education for Assistance Dogs Services-

Merlin’s Kids-

Service Monkeys-

ADA Resources

U.S. Department of Justice-

U.S. Equal Employment Opportunity Commission-

The ADA National Network-

U.S. Access Board-

World Institute on Disability-

Disability Rights Education and Defense Fund(DREDF)-

Disability Rights Legal Center-

Disability Rights Advocates-

Social Security Resources

Medicaid and Medicare Resources



The Medicare Rights Center-


The Center for Medicare Advocacy, Inc.-

Centers for Medicare and Medicaid Services-

Insure Kids Now!-

Employment Resources

Social Security Administration-

Rehabilitation Services Administration-

ADA National Network-

Office of Disability Employment Policy-

Job Accommodation Network-

National Business And Disability Council-

National Collaborative on Workforce and Disability for Youth-

Model Systems Knowledge Translation Center-

Abilities Fund-

Consortium for Citizens with Disabilities-

Council for Disability Rights-

Disabled Businesspersons Association-

U.S. Office of Personnel Management-

AgrAbility Project-

Financial Planning Resources


The National Multiple Sclerosis Society-


The ABLE National Resource Center-

Military and Veterans Resources

Army Emergency Relief-

Navy-Marine Corps Relief Society-

Air Force Aid Society-

Invitational Travel Orders- Toll Free 1-888-332-7366

Computer/Electronic Accommodations Program-

Defense & Veterans Center for Integrative Pain Management-

U.S. Army One Source-

U.S. Marine Corps Community Services-

U.S. Navy Installations Command-

U.S. Air Force Combat & Support Community Services-

Army National Guard-

Army Reserve-

Marine Corps Reserve-

Navy Reserve-

Air Force Reserve-

Army Wounded Warrior Program-

Marine Corps Wounded Warrior Regiment-

Marine For Life-

U.S. navy and U.S. Coast Guard Wounded Warrior Safe Harbor-

Air Force Wounded Warrior-

U.S. Special Operations Command(SOCOM) Care Coalition-

Transition Assistance Advisors-

Yellow Ribbon Reintegration Program- www.


The United States Department of Veterans Affairs-

Polytrauma care-

The National Resource Directory-

The Federal Recovery Coordination Program-

My HealtheVet-

Civilian Health and Medical Program of the Department of Veterans Affairs-

GI Bill-


National Personnel Records Center, Military Personnel Records-


VA SCI Centers-

Returning Service Members(OEF/OIF)

The National Call Center for Homeless Veterans-

Spiritual Services- 1-877-222-8387

Vet Center-

Veterans Crisis Line- 1-800-273-8255

Center for Minority Veterans-

VA Office of Survivors Assistance(OSA)-

Center for Women Veterans-


Social Security & Medicare-


American Legion-

AMVETS(or American Veterans)-

Disabled American Veterans(DAV)-

Paralyzed Veterans of America(PVA)-

Veterans of Foreign Wars(VFW)-

Tricare and the Affordable Care Act-

Fallen Patriot Fund-

Fisher House-

Green Beret Foundation-

Gulf War Veteran Resource Pages-

Homes For Our Troops-

Iraq and Afghanistan Veterans of America-

Korean War Veterans Association-

Military Order of the Purple Heart-

National Coalition for Homeless Veterans-

Operation Homefront-

Semper Fi Fund-

The SHARE Initiative-

Vietnam Veterans of America-

Wounded Warrior Project-

World War II Veterans-

Transition Assistance Program(TAP)-

Verification of Military Experience and Training-

America’s Heroes at Work-

Career Center for Wounded Warriors-

Federal Jobs for Veterans-

Helmets to Hardhats-

Job Opportunities for Disabled American Veterans-

Mission Continues-


VA for Vets-

Veterans’ Employment and Training Service-

Veterans’ Preference-


VetSuccess on Campus-

Vocational Rehabilitation and Employment-

VA Caregiver Support-

Elizabeth Dole Foundation: Caring for Military Families-

Resources and Education for Stroke Caregivers’ Understanding and Empowerment (RESCUE)-

Special Compensation for Assistance with Activities of Daily Living(SCAADL)-

Tragedy Assistance Program for Survivors(TAPS)-

Bob Woodruff Foundation-

Brain Injury Association of America-

National Brain Injury Information Center- Toll Free 1-800-444-6443

Deployment Health Clinical Center-

Defense and Veterans Brain Injury Center-

National Center for Telehealth & Technology-

Children’s Resources

The Arc-

Ability Online-

Council for Exceptional Children-

Camp Ronald McDonald-

Easter Seals-

Education Resources Information Center-

Family Voices-

Island Dolphin Care-

Kids As Self Advocates-

Family Center on Technology and Disability-

Early Childhood Technical Assistance Center-

National Organization for Rare Disorders-

Parents Helping Parents-

Parent Advocacy Coalition for Educational Rights-

Sibling Support Project-

Starlight Children’s Foundation-

Through the Looking Glass-

Association of University Centers on Disabilities-

Career Opportunities for Students with Disabilities-

Families and Advocates Partnership for Education-

Financial Aid for students with disabilities-

Financial Aid for undocumented students-

Going to College-


IDEA Partnership-

Kid’s Chance-

National Center on Disability and Access to Education-

National Dropout Prevention Center for Students with Disabilities-

Office of Special Education and Rehabilitative Services-

U.S. Dept. of Education’s Tool Kit-

Caregiving Resources

Caregiver Action Network-

National Alliance for Caregiving-

The Rosalynn Carter Institute for Caregiving-

Well Spouse Association-

The Family Caregiver Alliance-


Caregiver Media Group-

National Respite Coalition Network-

National Caregivers Library-

Shepherd’s Centers of America-

Personal Care Assistants: How to Find, Hire and Keep-

Paralysis Community-

CareCure Forum-

Spinal Cord Injury Caregivers-

Nursing Home Compare-

Advocacy Resources


American Association of People with Disabilities(AAPD)-

Association of Programs for Rural Independent Living(APRIL)-

National Organization on Disability-

National Council on Disability(NCD)-

The Disability Social History Project-

The Disability History Museum-

Society of Disability Studies-

Association on Higher Education and Disability(AHEAD)-

National Council on Independent Living-

Independent Living Research Utilization(ILRU)-

United States International Council on Disabilities(USICD)

Disabled Peoples’ International-

Rehabilitation International-

Media Resources


Ability Magazine-

Exceptional Parent-


MSAA Motivator-

New Mobility-

PN(Paraplegia News)-

Ragged Edge-

Sports ‘N Spokes-

Online Resources

CareCure Community-

BrainTalk Communities-

The Stroke Network-

Paralysis Community-

Religion Resources

Joni and Friends-

National Catholic Partnership on Disability(NCPD)-

Yachad National Jewish Council for Disabilities-

Lift Disability Network-

The Episcopal Disability Network-

Disabled But Not Really is a 501(c)3 organization providing equal access to the underserved disabled community; through programs that focus on fitness, wellness, and mental health.

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